Types of Available Data

Kentucky Cancer Registry recognizes four categories, levels, or types of data that can be released for cancer surveillance and research purposes.

  1. Reports of aggregate data stratified by non-confidential data fields (i.e. case counts by race, sex, county, etc.).
  2. Data files containing individual, record-level data with no personal identifiers. The files will not contain name, street address, phone number, social security number, date of birth, any reporting facility or physicians involved in the patient's care. The files may contain zip code and county of residence.
  3. Data files containing individual, record-level data with personal identifiers, to be used for purposes of record linkage, either electronic or manual, but not direct patient contact. Once the record linkage is complete, the personal identifiers will be removed from the data set.
  4. Files containing individual, record-level data with personal identifiers, to be used for research purposes involving direct patient or family contact

Non-Confidential Data Fields

Research

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